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Data Access Request Service

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National Disease Registration Service (NDRS) Datasets and process for requesting data

On 1 October 2021, the responsibility for the management of the National Disease Registration Service (NDRS), a collection of data on all cancers, rare diseases and congenital anomalies diagnosed each year in England, transferred from Public Health England (PHE) to NHS Digital and NHS Digital is now the data controller for this data. 

While we intend to integrate our data access processes in future, the process for requesting NDRS data has not changed and is still managed by the Office for Data Release (ODR): you can find out more about how to submit access requests by contacting odr@phe.gov.uk

Please note, the pause to the usual ODR approval process that was put in place during the transfer from PHE to NHS Digital ended on 6 December. 

Further information on the NDRS data application process  (If you cannot access the NDRS page in the Edge browser, please try with other commonly used web browsers).

   

 

February 2022

Help us improve our Secure Data Access Service

NHS Digital is looking for volunteers to take part in user research sessions that will help us improve our service. If you are interested in taking part, please see more details here.

 

 

September 2021

Microsoft Internet Explorer is now end-of-life, and Microsoft is withdrawing support for it.  As a result, NHS Digital is no longer offering support for Internet Explorer in its products, and web-based services produced by NHS Digital may not work correctly.  For further information please see the information about Withdrawal of support for Internet Explorer.

 

August 2021

We are prioritising requests for data relating to managing the pandemic as urgent requirements. This means that other applications or enquiries may be delayed.

In the meantime, please refer to the DARS guidance and standards to ensure you have addressed all the information requested before submitting your application.

 

May 2020

Charges apply for data applications including COVID19-related data requests.

To support the response to the coronavirus outbreak, NHS Digital has been asked to establish a central collection of GP patient data for COVID-19 purposes for the duration of the coronavirus emergency period, under the COVID-19 Public Health Directions 2020 (COVID-19 Direction). More information about this requirement is contained in the Data Provision Notice (https://digital.nhs.uk/about-nhs-digital/corporate-information-and-documents/directions-and-data-provision-notices/data-provision-notices-dpns/gpes-data-for-pandemic-planning-and-research) published on 14 May 2020. Access to GPES Data for Pandemic Planning and Research (COVID-19) can now be applied for.

Please be aware that this data set has a specific application process (https://digital.nhs.uk/services/data-access-request-service-dars/gpes-data-process-for-assessing-requests) and data is only available for planning and research for COVID-19 purposes. It is not available for any other purposes.  

The first step is to apply via the NHS X front door at  agem.covid-19datasharing@nhs.net attaching Form E to the email prior to completing your application on DARS online.

 

In order to access the DARS site please login

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